Michael Harrop
Active member
Taken down elsewhere, so re-posting it here.
Evidence: https://humanmicrobiome.info/where-to-get-fmt/#microbiomaorg
Original 25 Aug 2022 (2 comments).
Evidence: https://humanmicrobiome.info/where-to-get-fmt/#microbiomaorg
I volunteered with them for two years. I ran the North America portion. Helped translate the website to English, hired people to create flyers, spread thousands of flyers in my area, purchased ads for finding donors, screened hundreds of donors. I'm the creator of the largest hub of scientific info on the gut microbiome and FMT, so I'm very knowledgeable on this stuff, and driven by my own poor health. I had the expertise, and Ivan had the platform.
I wanted to keep prices low to be affordable for everyone. They kept insisting on raising prices, so I split off and started up my own project.
There were no problems for the next 9 months or so. There were accounts that posted positive reviews on social media, and people were skeptical about the veracity of them, but no major issues other than that. But then someone reported on Reddit that the Microbioma owner lied to them about the donor's medical conditions, and the stool recipient contracted eczema from the donor. This was brought up on an FMT Facebook group, and the Microbioma owner responded by doubling down on more and more lies.
Since I had insider information from my time with them, I shared that to show the owner was lying. Somehow they got the admin of the group to remove people who share that information. So it was shared on Reddit. Instead of trying to counter the evidence, they then attempted to purge the internet of every mention of this information. They used false copyright claims, claimed it was private information, made a bunch of alt accounts to brigade and astroturf, hired 3rd parties to join in, posted fake & malicious reviews in retaliation on those that were helping share the information, and even hired lawyers to send legal threats.
Their behavior is eerily similar to Putin/Russia. They preemptively accuse their detractors of doing all the same unethical things that they themselves are doing.
Then people started reporting getting worse. It seems like about 1/3rd of people are reporting getting worse, 1/3rd report no difference, and 1/3rd report benefits. If you look at the scientific literature, 1/3rd getting worse is not a thing. Despite what Microbioma-associated accounts claim, this is not normal. The literature shows FMT to be very safe. This is very clearly a low quality donor promoted by someone who only cares about milking as much money as possible from people who don't know any better.
Due to my 2 years of volunteer work with them, I was offered to use the donor for free. Despite my health being extremely poor, and thus being quite desperate for a donor, I declined due to the above issues. Yet supposedly there are people spending tens to hundreds of thousands of dollars on them.
Original 25 Aug 2022 (2 comments).
- FMT Clinics
- I included all required info