EpilepsyFMTcure
New member
- Joined
- Apr 29, 2025
- Messages
- 25
I've tried keto diet twice now to help with my epilepsy with mixed results both times. The first time I didn't eat enough fat and made my gut significantly worse for a couple weeks, and during that period made my epilepsy worse as well. That was roughly two years ago. Since then I had a gut bacteria test and I have high Klebsiella p and Enterobacter cloacae. About two months ago I tried keto again with a better understanding of fat to protein ratios and for the first week and a half it worked perfectly and my gut regulated extremely well. Totally normal stool for the first time in probably 20 years. Best I had felt in so long. Then I started having the same issues return, very loose stool, high anxiety, auras (but not full seizures). I weaned myself back to a "normal" diet since then, fairly low carb still I guess. Apparently klebsiella specifically can live off the mucosa alone which means what likely happened was that keto mainly killed off a lot of good bacteria as well as some klebsiella/enterobacter c, but then the klebsiella switched to consume mucus and was able to grow even more. In epilepsy, keto works for 70% of people who try it, and doesn't work for 30%, and I believe this is probably why (pathogenic bacteria that can survive on mucus). But now I'm curious if anyone else has tried this diet for their own illnesses and what results they've had.
I've since gone to a gastroenterologist in hopes of finding a way to eradicate these two strains specifically any they weren't very helpful. She suggested I could have SIBO, but I've read really mixed things about SIBO so if anyone has input on that as well I'd really like to know. The drug the gastro suggested I take (after a sibo test) is rifaximin, and for obvious reasons I'm skeptical of that. I suspect it could just kill off the good bacteria and then allow the pathological ones to overgrow when the run of antibiotics end.
I'm sort of looking for anecdotal experiences here, anyone whose tried this and what it was like for them and maybe what strains they've been struggling with. Ideally if anyone else has the strains I have, how are you dealing with them? Is there a way to overcome this? FMT seems to be my only hope since it can completely overcome pathological strains thru quorum sensing (dominant strains in a biome can suppress smaller strains thru density molecules essentially so a high quality FMT can overpower the "invasive" strains).
I've since gone to a gastroenterologist in hopes of finding a way to eradicate these two strains specifically any they weren't very helpful. She suggested I could have SIBO, but I've read really mixed things about SIBO so if anyone has input on that as well I'd really like to know. The drug the gastro suggested I take (after a sibo test) is rifaximin, and for obvious reasons I'm skeptical of that. I suspect it could just kill off the good bacteria and then allow the pathological ones to overgrow when the run of antibiotics end.
I'm sort of looking for anecdotal experiences here, anyone whose tried this and what it was like for them and maybe what strains they've been struggling with. Ideally if anyone else has the strains I have, how are you dealing with them? Is there a way to overcome this? FMT seems to be my only hope since it can completely overcome pathological strains thru quorum sensing (dominant strains in a biome can suppress smaller strains thru density molecules essentially so a high quality FMT can overpower the "invasive" strains).
