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  1. S

    What's wrong with my gut?

    Be aware though that excess vitamin C is turned into oxalate, so if you have any oxalate issues this might actually make you worse. DO make sure you aren't seriously deficient in any vitamins, however if you supplement them, be on the lookout for any changes, good or bad. Positive changes would...
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    Video Is SIBO real? SIBO vs dysbiosis? Debunking the SIBO hypothesis | Small Intestinal Bacterial Overgrowth

    ...only, and treated with rifaximin without improvement. At that point I had diarrhea, neuropathy, and depressed mood, but no anxiety, brain fog(*), or bloating. Some of that may have been post-Lyme symptoms, but some of it was almost certainly the dysbiosis. 2013--Beginning of severe anxiety...
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    Donors Amish as stool donors for FMT

    This doesn't imply anything whatsoever about genetics, rather it implies something about bacterial utilization of lactose. Lactose intolerance occurs when there is insufficient lactase produced by the host to break down lactose, allowing bacteria to ferment the lactose and produce gas. So the...
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    Video Is SIBO real? SIBO vs dysbiosis? Debunking the SIBO hypothesis | Small Intestinal Bacterial Overgrowth

    I had depression and sometimes irritability, but not any face swelling. This was when I first was treated for SIBO. By the time I had my FMT, I had developed severe anxiety, but this had started with a stressful experience (though having a messed-up gut perpetuated it--and the FMT greatly...
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    Donors Amish as stool donors for FMT

    Is photographing stools really necessary, if you can explain to them what the different stool types look like and ask them to determine which is closest to theirs? Yes you need to trust them, but so do you with other health information like disease and family history (the pathogen testing you...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    This is unlikely to make a difference, as it's not the self-administration of the transplants that is outlawed (the FMT doesn't have jurisdiction over such a thing, except possibly if doctors are assisting, and even then, it's likely medical boards that have most of the power) but rather the...
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    Video Is SIBO real? SIBO vs dysbiosis? Debunking the SIBO hypothesis | Small Intestinal Bacterial Overgrowth

    You basically answer this yourself in your next paragraph. It may be more a question of which bacteria are in the small intestine rather than how many. While people who test positive on hydrogen breath tests may indeed be more likely to have symptoms, what doesn't necessarily follow is that just...
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    Diet Diet outperforms microbial transplant to drive microbiome recovery in mice (April 2025)

    This paper is now open access, and I've read it. Here's what I took away: 1. The antibiotic treatment was harsh (3 antibiotics at the same time!) but brief (72 hours). This contrasts with most of us who underwent treatment for things like Lyme (one antibiotic at a time, but many of them rotated...
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    Why are bacteria more likely to colonize when doing FMT compared to taking regular probiotics?

    What about the studies with good results? It seems you don't even have a tag for that. It's pointless to just look at the failures and not the successes--the point is to find the things that are more common in the successful trials than the unsuccessful ones. Of course it wont be the case that...
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    Why are bacteria more likely to colonize when doing FMT compared to taking regular probiotics?

    My own experience and the experience of people I have read about (patient testimonials as well as comparing across clinical studies), this is NOT true. In fact if anything the opposite is true, where patients had good experiences with stool banks/providers who process more extensively and...
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    I’m terrified and don’t want to eventually develop a horrible disease, my gut is ruined! Help!

    The fact that you get worse from carbohydrates that feed gut bacteria is probably the biggest clue that the gut microbiome is a significant issue for you. Most people with a healthy microbiome can tolerate foods that feed it, in fact many of them get better from such a diet, especially since...
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    Why are bacteria more likely to colonize when doing FMT compared to taking regular probiotics?

    It's because they are FROM a human gut, so they are already selected for being able to survive there! SOME of the probiotic species (such as Lactobacillus acidophilus) were originally isolated from stool, but none of them have been cultivated in the gut for many, many generations. In addition...
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    Testing We may finally know what a healthy gut microbiome looks like (Dec 2025, n=34,694) Gut micro-organisms associated with health, nutrition and dietary interventions

    1. They only looked at cardiometabolic health--no neurological/neuropsychiatric conditions, no autoimmunity, etc. 2. If the only data on diet comes from an app that was asking everyone to eat fermented foods and a plant-based high fiber diet, you aren't going to get a lot of people in your...
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    I’m terrified and don’t want to eventually develop a horrible disease, my gut is ruined! Help!

    How did you get like this? Were there antibiotics involved?
  15. S

    High Zonulin + Strep. Suggestions?

    While I'm sure there are people in the world who have benefitted from this sort of approach, I suspect it will be difficult to find people like that here. People who end up trying FMT on their own, or else have FMT performed by a doctor and then seek it out again due to highly favorable results...
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    Donors Where to get a stool donor for FMT or how to find one?

    In short, nothing that traveling to San Francisco would help you with. One FMT was from OpenBiome, one donor (2 FMTs) was from Human Microbes, and two donors were from Gezonde Darmflora. OpenBiome, which was by far the most effective of those four, has been out of operation for several years...
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    FMT and COVID-19, vaccines. Any concerns about COVID vaccination affecting FMT quality? Does it matter if the donor is vaccinated?

    Marco from Gezonde Darmflora says a lot of potential recipients ask him about this. You should definitely try it. I found that I didn't really learn much of anything about which donors and methods worked for me until I started actually trying things. It's very easy to get stuck in "analysis...
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    FMT and COVID-19, vaccines. Any concerns about COVID vaccination affecting FMT quality? Does it matter if the donor is vaccinated?

    Firstly, keep in mind that there's no live virus in the vaccine, depending on the vaccine it's either a protein from the virus or a RNA molecule encoding a protein of the virus, neither of which can replicate in the human body. So the most there ever will exist is in that person's arm...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    This is such a circus. I have recently heard about the approval of continuous glucose monitors for sale to people without diabetes. There was someone I saw on Youtube (with diabetes) talking about how to use a glucose infusion pump and from there I got to looking into how all sorts of wearable...
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    FMT The Super-Donor Phenomenon in Fecal Microbiota Transplantation (Jan 2019, review)

    They also say this though: "Microbial dysbiosis is a blanket term for an unhealthy or imbalanced gut community. As such, the population structure that is considered to represent microbial dysbiosis is variable between different disorders (Duvallet et al., 2017). Moreover, the microbiome deficit...
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    Oral microbiome - Streptococcus overgrowth (test results)

    I've been meaning to respond to this sooner... but I sorted these by "percentile" a few weeks ago given the ranges you provided in parentheses (not a "real" percentile, but a fraction of the way between the lower and upper bound given). Around half of the ones below the 5th percentile (shown...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    How is the protest going? It seems you haven't posted any updates in a while, are you OK? By the way it seems as though the petition is stalling out. When I signed, it was at ~2670 signatures. Up until then, the signatures had been growing exponentially, with each week bringing between a 5x and...
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    Enhancing fmt reduced to less than 1% as effective as it used to be after i started taking high amounts of inulin daily years ago (reason likely being severely damaging my gut mucus layer)

    It sounds as if the inulin provoked a sort of manic experience for you at high doses, possibly as a result of what your gut microbes metabolized it into. This is conceivable because I have felt similar states as a result of overgrowth of the wrong bacteria in my gut, when they're fed by certain...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    That's unfortunately 90% of the "microbiome awareness" in our world... :-(
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    I knew you were tall... but I'm still surprised those other people looked so far away. It appeared as though your head was 50% higher off the ground than theirs were. It was probably just the weirdness of a phone camera though. That makes sense, at least for the more business-oriented people...
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    Video RFK Jr. hosts roundtable on long COVID (Sep 18, 2025)

    I have noticed this as well. However, there ARE some among them who are resourceful and creative. I was in a ME/CFS group once where people were discussing ordering chemicals from a research supply company that had been shown in the literature to inhibit pathogens theorized to contribute to the...
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    Video RFK Jr. hosts roundtable on long COVID (Sep 18, 2025)

    Is there any long COVID patient group where people have discussed success with FMT? Dr. Bhattacharya mentions several times that the NIH took hints on what to try from anecdotal stories in patient groups, so if there was a group where people were saying they improved from FMT, then they might...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    I just watched your video trying to get into the RFK hearing. I was wondering, why does the video make it look like you were up on some sort of pedestal? Did you try talking to some of the people in line? (I know some people might not have wanted to be on video talking with you--but maybe you...
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    Oral microbiome - Streptococcus overgrowth (test results)

    I'm hoping to change that. Aside from Rothia mucilaginosa and possibly Neisseria cinerea, nothing looks significantly low here. Is there anything else (Prevotella, Actinomyces, etc.) that really is strikingly low, (like <5% of the midpoint of the normal range)? or just a wide variety of...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    I don't mean he was necessarily an "average Joe"--he could have been a super important politician or businessman with lots of connections who is very well known in his circle of influence and still be a "random stranger" for these purposes. He could have even been in the healthcare field...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    I don't know if this is the right thread for this, but I watched most of your videos and had some comments. In one video, you mention that you approached a man who looked "visibly unhealthy", and he reacted " with astonishment that you came to that conclusion. Then when you educated him about...
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    The power of olive oil -- significant changes to gut microbiome, stool, and food tolerances

    I've found that one of the few links between many otherwise quite different things I do poorly with is phenolic compounds--they seem as a class to be bad news for me. That's true whether they're synthetic (e.g. aspirin, 5-aminosalicylic acid, acetaminophen) or natural (quercetin, green tea)...
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    Severe Microbiome Dysbiosis – Seeking Feedback and Practitioner/Research Referral

    EpilepsyFMTCure, which of the SCFA bacteria strains helped you and which didn't?
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    FMT Efficacy of encapsulated fecal microbiota transplantation and FMT via rectal enema for irritable bowel syndrome: a double-blind, randomized, placebo-controlled trial (CAP-ENEMA FMT Trial) (Sep 2025, n=45) "Higher clinical response and quality of life in both FMT groups than placebo"

    Have you ever found a study that gave enough information (such as describing stool type) that you would consider the donor(s) that they used GOOD quality??
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    Looking for Guidance on Gut Microbiome and Brain Aging Research + PhD Proposal Editor Needed

    I'd be happy to read over your proposal. I've applied to PhD programs three times so I know what's involved. I'm also currently at an aging research center so I know that field well. This board doesn't REALLY have DM's, I mean technically it does, but the owner can read and respond to them (and...
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    FMT Repeated faecal microbiota transplantation for individuals with type 1 diabetes and gastroenteropathy (Sep 2025, n=17) "Participant satisfaction was high, with 86% reporting considerable benefits"

    It's good to see that they did this. I wonder to what extent this improved results, vs. just guessing on one "best" donor without any clinical track record to back that choice up and writing patients off as nonresponders if they didn't improve from this one donor.
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    Oral microbiome - Streptococcus overgrowth (test results)

    Thanks for sharing this test here! I didn't know such a thing existed. Aside from reducing sugars and simple carbohydrates, or trying to get bacteria from a healthy donor, I don't know of a way to reduce Streptococcus. Many probiotics contain their own species of Streptococcus, which are...
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    Severe Microbiome Dysbiosis – Seeking Feedback and Practitioner/Research Referral

    Michael is right, aside from practitioners who perform re-seeding of the microbiome with organisms from a healthy gut, i.e. FMT, microbiome treatment isn't really a thing that has results to show for it. Functional medicine practitioners use the gut as kind of like a marker that shows whether...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    They have been pulled from the schedule quite clearly for political reasons, NOT because there are any new scientific findings negating the favorable benefit/risk ratio. I support anyone being able to choose to get or not get this vaccine, but I'm not going to buy into politicians' judgments on...
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    Other What exactly is forbidden in the US with regards to FMT?

    So from the Science Forums thread it appears as if Rebyota can be used off-label--so shouldn't we be encouraging medical practices to go into the area of prescribing it for patients with damaged microbiomes? Back when I was undergoing Lyme treatment, there were a lot of questionable independent...
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