Recent content by SFBayFMT5

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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I think we ARE talking a completely different language. The only thing I care about right now is finding new donors. Therefore the only question that's relevant to me about DF3 is how it could inform my future choice of donors. For instance, would someone who does poorly with her also react...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    It seems the most likely would be if there's a podcast about DIY science, biohacking, etc. Appearing on a podcast that is already controversial for politics seems like it could really backfire--I wouldn't want FMT associated in the least with radical anti-vax, QAnon, or any other fringe...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I'm very confused now. You said, in your own words, "I also had benefits from this donor in some other areas. It got rid of my brainfog for 90% and helped against my severe bloating." This is, as I understand, pertaining to DF5. And you said that "Before that I had normal stool on the...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    Umm... so now you're agreeing with the people who have been telling you that it's too experimental and has major risks? Again... so you're now agreeing that disgust is one of the main factors, when you have spent about five posts trying to convince us why it's insignificant in the larger...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    Just some points of clarification, as I suspect some people may misunderstand parts of the above--I'm NOT implying that FMT recipients mistreat donors in any way, or even tend to. Most of us are very nice to donors who we actually feel are promising, and very "down to earth" in our expectations...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    In one of the Reddit threads you link, someone ("WalterBishRedLicrish") said the following: This seems to be exactly the sort of thing that NameHere was saying, and I have been noticing. There seems to be a strong aversion among many people to the idea of using something from a healthy...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    The difference is that biology has noise and variability that the physics of flight doesn't. A machine either flies or it doesn't, whereas a "drug" that ISN'T actually a drug at all will help some people by the placebo effect, and an actually very effective drug will fail for some people. The...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    The thing is that for some of us we've had a FMT experience that WAS a "holy grail" for them. If you present it as "it's cruel to deny people something that worked for them in the past just because it isn't 'proven' (where that necessarily implies a population, rather than an individual)", then...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    Ummm... wasn't the whole thread (the one you removed these posts from) about how every Congressperson you stop in the hallway and ask about FMT, or nearly every one who you try to set up an actual one-on-one meeting with to discuss FMT, ignores you and goes right back to whatever they were doing...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    How are you so sure that this is not simply a function of who responds to you, rather than how the majority of people feel? In my experience, people (at least neurotypical ones) who are grossed out or creeped out by ideas react to this by ignoring the people who make them feel that way, without...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    This is totally it. Someone I know who is looking for a donor posted on a forum for residents of a town near her, asking for donors, and some people were apparently downright RUDE to her. I just saw one that hinted sideways that he was questioning whether she might be some kind of pervert, but...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    LOL! I guess now you need a colonic with water filtered to a very high standard of gender purity in order to decontaminate your gut from any transgender microbes that your system may have been inadvertently exposed to! Next thing you know some of the Gram positives are going to start dressing in...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    To be clear, what happened to me with DF3 is not likely something that would show on a stool or blood test. It's not that I picked up a disease from her, it's that the proportions of bacteria in her stool were far too stimulating for my system, both for my gut (causing diarrhea) and my brain...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I reported my success with them here: https://forum.humanmicrobiome.info/threads/temporary-success-with-openbiome-in-2015-for-post-lyme-and-neuropsychi.358/ FYI they are no longer operating. They also only provided FMT for C. diff while they WERE operating. You can find other mention of them...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    Good to know that too about Microbioma. Though the situation with the Microbioma donors is confusing, I can never keep straight who is talking about whom. Because some people said there was one male donor and one female, some said there were originally two male donors but then they got a third...
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