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  1. S

    Enhancing fmt reduced to less than 1% as effective as it used to be after i started taking high amounts of inulin daily years ago (reason likely being severely damaging my gut mucus layer)

    It sounds as if the inulin provoked a sort of manic experience for you at high doses, possibly as a result of what your gut microbes metabolized it into. This is conceivable because I have felt similar states as a result of overgrowth of the wrong bacteria in my gut, when they're fed by certain...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    That's unfortunately 90% of the "microbiome awareness" in our world... :-(
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    I knew you were tall... but I'm still surprised those other people looked so far away. It appeared as though your head was 50% higher off the ground than theirs were. It was probably just the weirdness of a phone camera though. That makes sense, at least for the more business-oriented people...
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    Video RFK Jr. hosts roundtable on long COVID (Sep 18, 2025)

    I have noticed this as well. However, there ARE some among them who are resourceful and creative. I was in a ME/CFS group once where people were discussing ordering chemicals from a research supply company that had been shown in the literature to inhibit pathogens theorized to contribute to the...
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    Video RFK Jr. hosts roundtable on long COVID (Sep 18, 2025)

    Is there any long COVID patient group where people have discussed success with FMT? Dr. Bhattacharya mentions several times that the NIH took hints on what to try from anecdotal stories in patient groups, so if there was a group where people were saying they improved from FMT, then they might...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    I just watched your video trying to get into the RFK hearing. I was wondering, why does the video make it look like you were up on some sort of pedestal? Did you try talking to some of the people in line? (I know some people might not have wanted to be on video talking with you--but maybe you...
  7. S

    Oral microbiome - Streptococcus overgrowth (test results)

    I'm hoping to change that. Aside from Rothia mucilaginosa and possibly Neisseria cinerea, nothing looks significantly low here. Is there anything else (Prevotella, Actinomyces, etc.) that really is strikingly low, (like <5% of the midpoint of the normal range)? or just a wide variety of...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    I don't mean he was necessarily an "average Joe"--he could have been a super important politician or businessman with lots of connections who is very well known in his circle of influence and still be a "random stranger" for these purposes. He could have even been in the healthcare field...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    I don't know if this is the right thread for this, but I watched most of your videos and had some comments. In one video, you mention that you approached a man who looked "visibly unhealthy", and he reacted " with astonishment that you came to that conclusion. Then when you educated him about...
  10. S

    The power of olive oil -- significant changes to gut microbiome, stool, and food tolerances

    I've found that one of the few links between many otherwise quite different things I do poorly with is phenolic compounds--they seem as a class to be bad news for me. That's true whether they're synthetic (e.g. aspirin, 5-aminosalicylic acid, acetaminophen) or natural (quercetin, green tea)...
  11. S

    Severe Microbiome Dysbiosis – Seeking Feedback and Practitioner/Research Referral

    EpilepsyFMTCure, which of the SCFA bacteria strains helped you and which didn't?
  12. S

    FMT Efficacy of encapsulated fecal microbiota transplantation and FMT via rectal enema for irritable bowel syndrome: a double-blind, randomized, placebo-controlled trial (CAP-ENEMA FMT Trial) (Sep 2025, n=45) "Higher clinical response and quality of life in both FMT groups than placebo"

    Have you ever found a study that gave enough information (such as describing stool type) that you would consider the donor(s) that they used GOOD quality??
  13. S

    Looking for Guidance on Gut Microbiome and Brain Aging Research + PhD Proposal Editor Needed

    I'd be happy to read over your proposal. I've applied to PhD programs three times so I know what's involved. I'm also currently at an aging research center so I know that field well. This board doesn't REALLY have DM's, I mean technically it does, but the owner can read and respond to them (and...
  14. S

    FMT Repeated faecal microbiota transplantation for individuals with type 1 diabetes and gastroenteropathy (Sep 2025, n=17) "Participant satisfaction was high, with 86% reporting considerable benefits"

    It's good to see that they did this. I wonder to what extent this improved results, vs. just guessing on one "best" donor without any clinical track record to back that choice up and writing patients off as nonresponders if they didn't improve from this one donor.
  15. S

    Oral microbiome - Streptococcus overgrowth (test results)

    Thanks for sharing this test here! I didn't know such a thing existed. Aside from reducing sugars and simple carbohydrates, or trying to get bacteria from a healthy donor, I don't know of a way to reduce Streptococcus. Many probiotics contain their own species of Streptococcus, which are...
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    Severe Microbiome Dysbiosis – Seeking Feedback and Practitioner/Research Referral

    Michael is right, aside from practitioners who perform re-seeding of the microbiome with organisms from a healthy gut, i.e. FMT, microbiome treatment isn't really a thing that has results to show for it. Functional medicine practitioners use the gut as kind of like a marker that shows whether...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    They have been pulled from the schedule quite clearly for political reasons, NOT because there are any new scientific findings negating the favorable benefit/risk ratio. I support anyone being able to choose to get or not get this vaccine, but I'm not going to buy into politicians' judgments on...
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    Other What exactly is forbidden in the US with regards to FMT?

    So from the Science Forums thread it appears as if Rebyota can be used off-label--so shouldn't we be encouraging medical practices to go into the area of prescribing it for patients with damaged microbiomes? Back when I was undergoing Lyme treatment, there were a lot of questionable independent...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    I certainly am not ignoring it. My question though is, how can we band together and do some kind of community outreach to find the people who AREN'T turned off by this. Michael is trying to do this on a national scale, which is commendable--but if we all banded together to help each other find...
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    Other What exactly is forbidden in the US with regards to FMT?

    Ok so FMT IS considered "a drug" even when it is not manufactured by a pharmaceutical company. Are you referring here to your inability to recruit effective donors paying them as much as you did before? So it does seem like you would need to remove all mention of FMT then.
  21. S

    Other What exactly is forbidden in the US with regards to FMT?

    Some comments in the recent thread on Scienceforums.org made me think to ask this question. It's relevant to how exactly FMT products can or cannot be marketed in the USA, and hence to how a successor to Human Microbes would need to operate. People there were claiming that FMT is merely not...
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    Article Finch wins US jury trial against Ferring over fecal-transplant patents (Aug 2024, Rebyota)

    Their latest clinical trial mentions a "full spectrum" microbiome therapeutic, which would support this: https://pubmed.ncbi.nlm.nih.gov/39366468/ The question I would have is, what's the difference between the various products in their pipeline (CP101, FIN-524, FIN-525, FIN-211)? Are some of...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    That's just it. I ASSUME that ANY provider of FMT will have recipients who have gotten worse from certain donors. Even OpenBiome, whose FMT did more than Gezonde Darmflora and Human Microbes combined, with fewer side effects, has negative experiences, as Michael has posted here about before...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I don't need to trust, or NOT trust, anything that Marco said to know how I reacted to DF3, and how different it was from how I reacted to her brother DF7. It was not Marco who in any way raised the possibility that it would extend to other females of her age--it's just me being a scientist and...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    Anyone who isn't liberally biased is going to associate FMT with "experimental dangerous medicine that doesn't work" if it gets associated with anyone liberal who pushed the covid vaccines. One could go the other way though and say that anyone who seriously thinks the COVID vaccines are a prime...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I think we ARE talking a completely different language. The only thing I care about right now is finding new donors. Therefore the only question that's relevant to me about DF3 is how it could inform my future choice of donors. For instance, would someone who does poorly with her also react...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    It seems the most likely would be if there's a podcast about DIY science, biohacking, etc. Appearing on a podcast that is already controversial for politics seems like it could really backfire--I wouldn't want FMT associated in the least with radical anti-vax, QAnon, or any other fringe...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I'm very confused now. You said, in your own words, "I also had benefits from this donor in some other areas. It got rid of my brainfog for 90% and helped against my severe bloating." This is, as I understand, pertaining to DF5. And you said that "Before that I had normal stool on the...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    Umm... so now you're agreeing with the people who have been telling you that it's too experimental and has major risks? Again... so you're now agreeing that disgust is one of the main factors, when you have spent about five posts trying to convince us why it's insignificant in the larger...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    Just some points of clarification, as I suspect some people may misunderstand parts of the above--I'm NOT implying that FMT recipients mistreat donors in any way, or even tend to. Most of us are very nice to donors who we actually feel are promising, and very "down to earth" in our expectations...
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    Other What is the public perception of FMT? How much does it matter? Has it been blocking progress?

    In one of the Reddit threads you link, someone ("WalterBishRedLicrish") said the following: This seems to be exactly the sort of thing that NameHere was saying, and I have been noticing. There seems to be a strong aversion among many people to the idea of using something from a healthy...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    The difference is that biology has noise and variability that the physics of flight doesn't. A machine either flies or it doesn't, whereas a "drug" that ISN'T actually a drug at all will help some people by the placebo effect, and an actually very effective drug will fail for some people. The...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    The thing is that for some of us we've had a FMT experience that WAS a "holy grail" for them. If you present it as "it's cruel to deny people something that worked for them in the past just because it isn't 'proven' (where that necessarily implies a population, rather than an individual)", then...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    Ummm... wasn't the whole thread (the one you removed these posts from) about how every Congressperson you stop in the hallway and ask about FMT, or nearly every one who you try to set up an actual one-on-one meeting with to discuss FMT, ignores you and goes right back to whatever they were doing...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    How are you so sure that this is not simply a function of who responds to you, rather than how the majority of people feel? In my experience, people (at least neurotypical ones) who are grossed out or creeped out by ideas react to this by ignoring the people who make them feel that way, without...
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    Blog First results from our 1 in 23,000 stool donor (2022, HumanMicrobes.org)

    This is totally it. Someone I know who is looking for a donor posted on a forum for residents of a town near her, asking for donors, and some people were apparently downright RUDE to her. I just saw one that hinted sideways that he was questioning whether she might be some kind of pervert, but...
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    Blog The FDA and FMT regulation, part 2. (Jul 2024, HumanMicrobes.org) I met with the FDA. Here's what I shared with them, and their response.

    LOL! I guess now you need a colonic with water filtered to a very high standard of gender purity in order to decontaminate your gut from any transgender microbes that your system may have been inadvertently exposed to! Next thing you know some of the Gram positives are going to start dressing in...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    To be clear, what happened to me with DF3 is not likely something that would show on a stool or blood test. It's not that I picked up a disease from her, it's that the proportions of bacteria in her stool were far too stimulating for my system, both for my gut (causing diarrhea) and my brain...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    I reported my success with them here: https://forum.humanmicrobiome.info/threads/temporary-success-with-openbiome-in-2015-for-post-lyme-and-neuropsychi.358/ FYI they are no longer operating. They also only provided FMT for C. diff while they WERE operating. You can find other mention of them...
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    Gezonde Darmflora Experience with two Gezonde Darmflora donors. Significantly worse from DF3, some improvements from DF5.

    Good to know that too about Microbioma. Though the situation with the Microbioma donors is confusing, I can never keep straight who is talking about whom. Because some people said there was one male donor and one female, some said there were originally two male donors but then they got a third...
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