I just made a post there too: https://forum.policiesforpeople.com/t/fecal-microbiota-transplant-fmt-saved-my-health-let-s-make-it-widely-available/20967
Here is a list of federal and state legislators we should be contacting:
1. Senators and Representatives
U.S. Senators: Each state has two senators who vote on national healthcare policies. You can find and contact them here.
U.S. Representative: Your representative in the House focuses on...
What if we say something along these lines:
“3. Support clinical trials using top donors: Federal funding and partnerships are necessary to conduct large-scale clinical trials that compare the safety and efficacy of high-quality donors—like those identified by Human Microbes—against the average...
I’ve put together a petition to push the FDA for real change: reclassify FMT, allow stool shipments directly to doctors, and encourage clinical trials using the best donors we’ve identified. The goal is to get their attention and start moving toward proper regulation that works for patients, not...
Below I have listed people/organizations we can contact to help raise awareness. I encourage anyone reading this to reach out to as many of these people/organizations as possible providing your own personal experience with HM/FMT, the current dilemma HM is in, provide them with links to the blog...
I think it’s the more towards latter.
I think this is good start.
Horrible news that they won’t let this project continue as is. I would get a lawyer ASAP, one that has experience with the FDA. Maybe we can try starting a GoFundMe for lawyer fees?
Overview
Health started declining started after I took a two week course of Flagyl for tooth pain 10 years ago. My health declined more in a step wise fashion after taking other antibiotics. About two years ago I was in my worst state of health. I did FMT from FL-RS-1997 and my health went from...
Glad you had so much success! Just wondering, how are you not sure your success is from a more compatible donor rather than thawed vs. unthawed? Also did the results stick?
I’ve suggested FMT to family members who are sicker than I am and their reasoning for not wanting to do it is because they think it doesn’t work despite me giving them a tremendous amount of evidence it does. When I tell them that it helped me, they say it was because of placebo lol.
Thats unfortunate, I had a similar experience with my younger cousin but I wasn’t really getting any results anyway. Never really understood their reasoning.
I interesting that he experienced such drastic results from using a family members stool.
I notice that I get pretty bad anxiety after FMTs. It usually starts after the first one and lasts months after the last. I think it might be due to herx and donor-host interactions. My guess is Andrew...