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    General health David Fajgenbaum discovers treatment for his rare Castleman disease by self-experimentation

    Have any of you heard of this guy and his story? https://www.nytimes.com/2017/02/04/business/his-doctors-were-stumped-then-he-took-over.html This guy is leading a drug repurposing initiative for rare diseases, after having discovered a treatment for his own rare disease. He managed to get...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    From 00:35:20 in Casey Means' hearing: "The science is showing us, through amazing work in systems biology and network biology, that the physiologic causes of the vast majority of diseases... are connected by shared physiology and shared root causes." Then from 00:45:20: Dr. Jay Bhattacharya...
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    General health Using AI chatbots for medical advice

    You're lucky that you got significant improvement from treating Bartonella. I had Bartonella, but never RMSF, and the treatment for that made some things slightly better but not enough to really improve my life. The antibiotics for it though gave me recurrent C. diff, and then the FMT for that...
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    General health Using AI chatbots for medical advice

    Did it actually diagnose a condition that was confirmed by reputable tests and that was treatable by standard treatments for that disease/condition? The reason I ask is that there are quite a number of questionable diagnoses that you can nevertheless find plenty of practitioners to diagnose you...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    This is such a circus. I have recently heard about the approval of continuous glucose monitors for sale to people without diabetes. There was someone I saw on Youtube (with diabetes) talking about how to use a glucose infusion pump and from there I got to looking into how all sorts of wearable...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    That's unfortunately 90% of the "microbiome awareness" in our world... :-(
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    It would be GREAT if more of the scientific community started talking about gut bacteria "for real" as you put it. But if the conclusions are what you are imagining (that specific species are "blamed" for diseases, as opposed to the lack of certain species causing diseases), then the cure that...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    I think what we're running up against is a sort of "Catch 22" where most people don't try FMT because it's not readily available, and so then you don't have huge groups of people with success stories to tell who would sign petitions like this. Add to that the fact that even among those who DO...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    Who is most important for us to contact at this point?
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    Responded here: https://forum.humanmicrobiome.info/threads/thoughts-on-humanmicrobes-donor-problem.163/post-2528
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    Arizona State University has been doing FMT studies in kids with ASD for years. They found benefits. It hasn't translated yet into the treatment being widely available for ASD kids though.
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    So basically he is concerned with health care, or at least claims to be, but only so far as to help people afford conventional treatments like pharmaceuticals? Rather than accuse people of being frauds, your message should be that there is an effective treatment that is banned by the...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    How is that relevant to FMT? I'm assuming this was a hearing relating to health policy? If so, getting the serious attention of anyone in those hearings could be a win, even if it's only a few people. If this hearing was on an unrelated topic, then obviously it wasn't a good place to bring up...
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    How is the campaigning in DC going?
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    That site has "scam" written all over it! Lots of very good sounding but completely vague verbiage and no actual work they are doing.
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    Healthcare system Incoming trump admin with RFK signals new start for FDA

    I just wrote to Senator Cassidy last night
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